ElaineDuncan's Blog

May 27, 2010

A New and Better World for Aspies

Filed under: Asperger's Syndrome,Autism,Autism Spectrum Disorders — Elaine A. Duncan @ 12:39 PM

Hello ~ As many of you know,  I started my blog last week about autism spectrum disorders. As a mental health counselor specializing in ASD, I am excited to be starting a discussion about all of the wonderful people on the spectrum, how we can facilitate their having happy lives, and how the world can and does benefit from their gifts.

The prevalence of autism-related disorders is rising rapidly, a fact which is becoming well-known.  In my 7+ years of working in this field, the general population is becoming much more familiar with the term. Ask any teacher, and they will most likely say they have at least a few children on the spectrum in their classroom. So, we can continue to view this as an anomoly, a disorder, or perhaps we may want to look at it as a significant change in the make-up of the population of humans on our planet. While there are some “issues” that those with ASD sometimes have, such as sensory processing difficulties, social skills deficits, and attention deficit/hyperactivity, even these things can begin to be seen in a different light. Perhaps the “different” neurology of those on the spectrum is just the flip side of their special gifts. For example, could a computer programmer who is an Aspie do such a magnificent job of creating programs without the gift of hyperfocus? Could an autistic musical savant be the creative genius she is without being someone who isn’t conventional?

When I think of all the amazing talents I have been exposed to in working with people on the spectrum, it embarrasses me to think that we “neurotypicals” have all the answers. Mathematical, computer, musical and artistic geniuses are in my office every day. The world needs their special gifts! The travesty of squelching a child, giving him messages that he’s “different”, “bad”, a “misfit” often have the disastrous effect of, by the time he is a young adult, convincing him that he is worthless. Many young adults on the spectrum come into my office depressed, feeling hopeless about their future, and hating themselves. And why? Because they aren’t quite like most people. Of course they’re not! They are geniuses, savants, special gifts to the world!

Another major problem those on the spectrum often face in adulthood is fitting into our current economic structure to make a living. For every successful computer programmer, there is an Aspie (perhaps many) who have not been able to get hired or keep a job consistently. Here they are, brilliant and possessing special talents, and having to depend on SSI for income (if they can get it). Not only is living at that economic level very challenging in obvious ways, the consistent message that they are “failures” is depressing and often prevents expression of their gifts.

One of the major stumbling blocks to getting hired is our rigid system of hiring. No matter what the job is, the “test” is an oral interview. Most Aspies are not good at reading non-verbal signals, making small talk, knowing when to stop talking, etc., thus the diagnosis. So, put them in an interview situation and they’re not going to make a great impression. Why do we make computer programmers pass an oral interview? Why don’t we just set them down with a computer and ask them to show us their stuff?

We need to open our minds, our hearts, to a different way of  doing things. The conventional, pass-the-interview-work-for-the-corporation paradigm doesn’t work for many Aspies. Even our standard measure of success, which is buy-a-house-live-in-the-suburbs-raise-a-family isn’t one that works for everyone. Are there other lifestyles that can work and provide happy lives for folks that don’t fit the mold, but deserve a happy life as much as anyone? I believe there are, and that we need to facilitate creating them.

I recently learned about a place in New Mexico, a farm for autistic  women to live and work. It’s called Mandy’s Special Farm (www.mandysfarm.org), and is home to four adult autistic women who work on the farm and sell their various products. While only four women live there at a time, it appears to be a wonderful, workable concept which provides a happy, creative, safe environment and productive life for the women who live there. Living by and with animals is ideal for many autistics, who have a special bond with animals. Perhaps our new society will have a lot of places like Mandy’s Farm, and other viable lifestyle opportunities so that Aspies can thrive and contribute their talents.

As always, I welcome your comments. Let’s get a good, positive discussion and brainstorming going!

May 19, 2010

Autism: A Lifespan Condition with Special Gifts

Filed under: Autism Spectrum Disorders — Elaine A. Duncan @ 6:06 PM

Welcome to my Blog! This is my first one; very exciting for me.

Let me tell you just a little about myself, and why I decided to start a blog. I am a mental health counselor in private practice in Redmond, WA, USA, who specializes in autism spectrum disorders. While I have a general practice and often see folks who are not on the “spectrum”, I found that from the first day I started working with the autism spectrum population, I knew it was definitely for me.

Blogging seemed like a wonderful way to share my thoughts about ASD (autism spectrum disorders). Having been privileged to work with folks on the spectrum for 7+ years, I have a lot of observations, ideas, conclusions, and questions roaming around in my brain. I should note that my experience is with clients who are 12+, many of them being adults, with most of them having Asperger’s Syndrome.

The first, and one of my main thoughts, is that autism in NOT A CHILDHOOD DISORDER! It seems that most people, when one mentions “autism”, respond with, “oh, yes, that’s in kids, right?” or something similar. Well, sure autism begins in kids – it’s a developmental disorder. But those kids do grow up, and they still have autism! A tragedy occurring in our society (I am mostly familiar with American society; would love to hear from residents of other countries on this topic) is that our children on the spectrum are getting pretty good attention and supports. However, once they graduate high school, that ceases by and large. I have seen many, many cases in my practice where the graduate becomes very stuck and depressed because he/she doesn’t know what to do next. One of the features of autism is a deficit in self-initiation, yet they are expected to suddenly become self-initiating and goal-oriented after high school. Parents often become very frustrated and put a lot of pressure on their kid to go out and get a job, study for a career, etc. This, in turn, creates a terrible amount of stress on the “Aspie”, who may have done well in school, but can’t succeed without a lot of structure and support.

Another main point I want to get across is the positive aspects of ASD. So many of the messages parents hear when their child is diagnosed is negative: “disorder”, “treatment”, “disability” that they and the child may lose sight of the strengths and special gifts people on the spectrum have. This will be a theme in my writings, and I will share some of what I’ve learned from my clients about their special gifts.

I saw a beautiful movie I’d like to share with you. Although it’s not about teens or adults, I’m mentioning it because the message is very positive. It’s called, “The Horse Boy”, a documentary produced by Zeitgeist Films and directed by Michel O. Scott. It’s about a young boy who has been diagnosed with autism, and his parents. They take their child to Mongolia to work with horses, reindeer herders and a powerful shaman to help with his frequent tantrums and refusal to potty-train. It was a powerful reminder for me of the very special connection that people on the spectrum often have with animals, and the power of having parents who can accept their child’s autism with open hearts.

I welcome responses to this post; hopefully we can get a dynamic, positive message out there together!

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